Ostomy Support, Resources, & Information

Introduction

Individuals with new ostomies encounter multiple obstacles as they adjust to life with an ostomy. These difficulties also include psychosocial adaption to living with an ostomy and stoma care. There should be ongoing support and education offered after being discharged from the hospital post-surgery. In addition to home health services, there is the option for online self-learning education. This blog will aid in self-learning education and support. For further information, please view the links throughout the blog. 

 

Ostomy Manufacturer Support Services

The majority of manufacturing companies provide online support. For an individual with an ostomy, the services are free and cost-effective. Furthermore, manufacturing companies provide self-management online training and support. Telephone support is also provided by a customer service representative. Customer support can help with sample usage tips, locating local resources (retailers and clinicians), and navigating insurance.

 

American College of Surgeons 

The American College of Surgeons offers interactive education through its website. This kit contains a DVD video, a booklet, and equipment and supplies to practice applying an ostomy appliance.

 

  • Ostomy Home Skills Program https://www.facs.org/education/patient-education/skills-programs/ostomy-program 

 

Non-Profit Peer Support

Non-profit peer support groups provide advocacy and ostomy education. Ostomy peer support groups meet virtually on a secure conference platform. In addition, individuals with an ostomy may also meet on social media groups and discussion boards. Finally, ostomy 211 offers an additional service of donated ostomy supplies. 

 

  • United Ostomy Association of America, Inc. https://www.ostomy.org/https://www.ostomy.org/ Discussion board https://www.uoaa.org/forum/index.php
  • Ostomy 211 https://www.ostomy211.org/ OstoMyFamily https://www.facebook.com/groups/ostomyfamily/ OstoMySupplies http://ostomysupplies.ostomy211.org/

Conclusion

Online self-learning can provide learning at the individual’s pace and selected timing. In addition, ostomy manufacturing companies also offer customer support and education through their support programs. The support programs allow the individual to discuss support needs and obtain samples. The peer support groups aid in teaching and psychosocial adaption of with living with an ostomy.

 

Website Support

  • American Cancer Society https://www.cancer.org/
  • Brenda Elsagher’s Website (colon cancer survivor and comedian) https://livingandlaughing.com/
  • Caregiver Action Network https://www.caregiveraction.org/
  • Colorectal Cancer Alliance https://www.ccalliance.org/
  • Crohn’s & Colitis Foundation of America https://www.crohnscolitisfoundation.org/

Disclaimer

The views and opinions stated in this blog are exclusively those of the author and do not reflect those of iWound, its affiliates, or partner companies.

 

Further Reading and References

 

Davis, D., Ramamoorthy, L., & Pottakkat, B. (2020). Impact of stoma on lifestyle and health-related quality of life in patients living with stoma: A cross-sectional study. Journal of education and health promotion, 9, 328. https://doi.org/10.4103/jehp.jehp_256_20

 

Pittman J, Nichols T, Rawl SM. Evaluation of Web-Based Ostomy Patient Support Resources. J Wound Ostomy Continence Nurs. 2017 Nov/Dec;44(6):550-556. doi: 10.1097/WON.0000000000000371. PMID: 29117080.

 

Tsujinaka, S., Tan, K. Y., Miyakura, Y., Fukano, R., Oshima, M., Konishi, F., & Rikiyama, T. (2020). Current Management of Intestinal Stomas and Their Complications. Journal of the anus, rectum and colon, 4(1), 25–33. https://doi.org/10.23922/jarc.2019-032

 

Weinstein, R. S., Holcomb, M. J., Mo, J., Yonsetto, P., Bojorquez, O., Grant, M., Wendel, C. S., Tallman, N. J., Ercolano, E., Cidav, Z., Hornbrook, M. C., Sun, V., McCorkle, R., & Krouse, R. S. (2021). An Ostomy Self-management Telehealth Intervention for Cancer Survivors: Technology-Related Findings From a Randomized Controlled Trial. Journal of medical Internet research, 23(9), e26545. https://doi.org/10.2196/26545

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